Gestión de calidad en asociaciones de pacientes. Diagnóstico en la Federación Española de Fibrosis Quística

Abstract

The mission of the Spanish Federation for Cystic Fibrosis is to coordinate the Cystic Fibrosis Associations towards improving the quality of life of people with Cystic Fibrosis and their families.  The development has not been homogeneous among all member associations. This article exposes the diagnosis of the issue. Using a quantitative and qualitative methodology, documentary analysis, semi-structured interviews and surveys have been triangulated. The results obtained raise quality management as an element that favors associative strengthening and the figure of the social work professional as a driver of change in the third sector. In this way, all associations will have the means to improve the efficiency of their offered services, the satisfaction of their target groups, and the image they project to society.